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Metachromatic Leukodystrophy: Parents call for heel prick testing after death of son

The parents of Teddy Johnson, a seven-year-old boy from Portadown who passed away from Metachromatic Leukodystrophy (MLD), a rare degenerative metabolic disorder, are campaigning for the introduction of newborn screening that might have saved his life. Teddy’s mother, Jemma, revealed that her son was diagnosed at 18 months old, by which point treatment options were…